NMPA Research Base for Drug and Medical Device Regulatory Science Hainan Institute of Real World Data
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Overview

BO’AO RARE DISEASE MEDICAL CENTER

2022-03-21 520

BO’AO RARE DISEASE MEDICAL CENTER was jointly established on April 10th, 2020 in BO’AO Lecheng International Medical Tourism Pilot Zone in the province of Hainan in China, by Winhealth Investment (HK) Limited., Le Cheng Administration, BoAo Worldlight Hospital, and was invested by Winhealth Investment (HK) Limited.

 

Our mission is to keep pace with the latest development of the world to introduce the advanced rare disease medical products into Chinese market, bringing new hope to patients with rare disease in China and neighboring countries and regions. We are committed to establishing the comprehensive and advanced rare disease clinical medical center with the advanced diagnosis and treatment services in China, Southeast Asia and other surrounding areas.

 

Our continuous services are as follows: Providing the advanced rare disease drugs and medical devices、Offering the top diagnosis and treatment services by the leading experts on the rare disease、 Providing patient assistance projects in cooperation with the overseas manufacturers and public welfare funds、Coordinating the patients and doctors to participate in real world study、Holding rare disease academic professional events and patient organization activities.

We have reached hundreds of pharmaceutical enterprises in Europe, the United States and Japan, and have provided dozens of rare disease products, covering Urea Cycle Disorders (UCDs), Thyroid-associated ophthalmopathy (TAO), Cushing syndrome, Duchenne Muscular Dystrophy (DMD), Erythropoietic Protoporphyria and other rare diseases that are currently short of medical treatment and drugs in China. At present, there are  a large number of product  have been put into use or are in the application process.

 

In addition, we actively cooperates with various parties to build China's rare disease ecosystem, such as strategical cooperation with China Alliance For Rare Disease, and carries out academic activities, doctor-patient education and training, guideline development and other academic projects; Explore the feasibility scheme of rare disease products approved for listing through real-world research in Lecheng with well-known CRO companies; Build a "global rare disease drug searching" platform with Alihealth to accurately obtain the treatment needs of patients with rare diseases and find drugs globally; Cooperate with China Population Welfare Foundation to establish a rare disease care fund, carry out patient assistance projects and reduce the economic burden of some rare disease patients; Cooperate with the excellent patient organization representative — Illness Challenge Foundation to build a "service station of managed access medical for rare diseases", provide online and offline one-to-one services to assist  rare disease patients in medical treatment and medication, etc.

We hope that through our joint efforts with partners of the whole society, we can effectively improve the diagnosis and treatment level of rare diseases in China and provide better treatment options for Chinese patients and families. We will also make unremitting efforts to establishing the comprehensive and advanced rare disease clinical medical center with the advanced diagnosis and treatment services in China, Southeast Asia and other surrounding areas.

 

            BO’AO RARE DISEASE MEDICAL CENTER

            Address: No. 9 Kangxiang Road BOAO Lecheng International Medical Tourism Pilot Zone, Qionghai City ,Hainan Province

            Phone number: 0898-6279 9961

            Website: http://www.boaordmc.com/

            WeChat Official Accounts:

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